i really need one..cause i’m tired of being broke, it sucks..lol i will hopefully have one soon..=]

im doing great by the way..and sam is my buddie!! ILH EVERYDAY!!! i just thought I’d let u guys know..

anyone have any job ideas??

(sam is a girl for any of u wondering..lol)

So..tomorrow is a VERY special day..Its my so called “second birthday” and marks 6 months after transplant..which means..NO MORE MASKS!! lol its kind of a bitter sweet feeling because while i’m happy that i wont have to wear those “beauty blockers” anymore, i’m kinda bummed out that i wont be getting the usual stare when i enter a store or resturant..and theres gonna be no more telling people that i breathe fire(when wearing a mask and its cold out my glasses fog up when i breathe therefore ignorant adults are told i breath fire) when they stare at me for an excessive period of time..lol and now im gonna hav to think of a new ice breaker when i wanna talk to a girl..but its ok..i’ll jus tell them that my port is a shotgun shell that couldnt be removed or sumthing..=D

i took the fcat last week,which was pretty easy and im gonna laugh at my friends if i got a higher score then them since i didnt even get to review what i learned last year since i started skool so late..=P

well other than that im doing great..thank god..and EVERYONE who has prayed for me i appreciate it so much!!

my friend gera wants me to tell u guys that shes my new best friend..so here we go.. “Guys Gera is my new best friend” lol i ask that u please pray for her too, because she is facing a medical condition also..not gonna say what it is though..(for privacy issues)

oh yea..1 more thing..idk if he still reads this but i would like to thank Mr.Bennett for creating this blog in the first place, because without it u wouldnt know how im doing.. THANX!!!! =D

 -sabastian =]

I am doing great if anyone is wondering. I recently went to see Dr. Kelly and they lowered my dose of fk506(antirejection drug). She said that they wont even be checking its levels anymore because they are going to be slowly taking me off of them. And I can also get a job at the end of march which i cant wait for cuz i seriously need to make sum money..i dont know what made me think having  girlfriend was cheap..but its NOT!

Soo there you update everyone..

lol                 

=]

-sabastian

So nuthing is new really..still doing good..and so far the new year is boring..oh wait never mind..i went to the mall on monday with Brandom..and by the end of the night i had bought a new sweater, a new poster and i humped a cow..=D…..pictures coming soon..=]

So i have been yelled at numerous times by numerous people for not updating my blog..so here you go..i am 16 now and ready to get a job..but i have to wait until after flu season to get a job..oh yea.. i hav some good news i recently had a bonemarrow asp. done and its negative!!!! the lord has officially cured me of leukemia!! and if you are wondering..my christmas was great! i got a nintendo wii, clothes, and my cellular connected from my parents. my sis got me a hat that says tha fuzz on it..its really cool..my bro got me the wii zapper..and my other sis got me a stay at a marriot resort..i also got some VERY nice vans..courtesy of base camp..THANK YOU!!!

-Sabastian

So i’m home now..home home..and its freaking GREAT!!!..except for the boredom since i cant eally go anywhere..but besides that im home!! and  hav 100% of my sister’s cells..i still have to go see dr.kelly(staba) every 2 weeks or so but otherwise i’ll be taken care of by dr.eslin in orlando..YAY!! i am happy to be home but at the same time im really bummed out about Parker..Please keep him in your prayers..ALWAYS..please pray for jordan too i havent spoken to him in almost 2 months..i have no clue how he is doing and im super worried..

-sabastian

Well not really but thats how i feel..Remember how i said i had blood in my urine?? Well it got worss..clots started forming and they decided they wanted to get so big that i couldnt use the bathroom..So because of the im BACK in the hospital and unfortuately i have an irrigation catheter stuck up my “you know where” and its not fun..AT ALL..The problem is that the chemo from transplnt irritated my bladder and since my platelets were low it started bleeding continuously forming blood clots..and there is only one way for them to get out..through my urethra..but since they are so big they clog it..(think of it as a piece of starwberry stuck in a straw while you’re trying to drink your milkshake)..so the doctors put a cather in that pushes fluids into my bladder to keep clots from forming and empty the ones that are already in there..except occasionally a clot clogs the catheter too…so they have to come and forcefully push saline up the draining part of the catheter,then pull it back out to un clog it..I was told today if im not able to pee(on my own) by monday that i will be sedated and they will then go in and cauterize the parts of my bladder that are bleeding..and guess where they go through?? Ding Ding Ding!! We have a winner!! they go through my “You Know Where”…

please pray that everything goes ok and that  wont be in excrutiating pain..and pray for parker and his family they are going through some very troubling time right now..i would also like you to pray for jordan i havent talked to him in awhile..and i dont know how his transplant went..

thank you alot

-sabastian

I know, i know i havent updated in like FOREVER, but its not my fault..chemo gave me mouth sores and loss of appetite and i also got c-diff which sucks! but other than that i am doing GREAT!! I got discharged this past monday and only needed platelets once this week! I have some othe great news too.. My a.n.c. hasnt dropped below 3500 !! so im obviously making cells!! YAY!! Thanks to a test called S.T.R.’s  i have found out that i have 97% of my sister’s cells!! very close the the 100% goal! YAY!! =] Dr.Staba says if all goes well i should be going HOME in 2-3 weeks..

Happy Jamie??? (just to let you know im so sticking my tongue out at you right now) (and yaayyy for parker!!hes finally going to transplant!!)

thank you everyone who has prayed for me..i appreciate it ALOT!!

-sabastian

I guess its true about what they say “You never know what you have until its gone”. Im so bored here, i never thought I’d miss shalese and valerie coming in my room at 10:00 in the morning to get me up and make chocolate lolipops. =] Well i do. ALOT, i miss bothering sarah about her short pudgy fingers, i miss hasseling jennifer about her age, and listening to kristen calm paige down. I also miss staying up until 2 in the morning with the night crew, i miss leslie bringing me late night slushies,kim cracking jokes on me and sue making sure i ate something. I miss watching parker dig up his nose all the time and aaron’s random jokes, Its really funny watching rich and sarah argue over whether i should vote or not too..Rich is one cool guy..I miss talking with jamie about the stuff i’ve been through..it helps alot..for the both of us, i let off some pressure and she learns symptoms for different side-effects..payton calling me a “porcupine head” always cheered me up too.. i guess i’m just used to being around children and families, over here theres just a bunch of old people, and the nurses are too busy to chat with..everyone here seems like they are just here to work..Not work and enjoy work.  I should be starting school soon, so maybe that will give me something to do. I hope so because you know there is something wrong when you WANT to learn algebra..Well it is 1:41 thursday morning so i should be going to sleep, i have t.b.i in the morning at 8..which is ALWAYS fun <—–sarcasm, i hav 3 doses of t.b.i left then im ready for my sisters bone marrow..Finally! Boy i cant wait for friday to come..well i cant wait for recovery to come..I ask that you pray for no infections and a quick/healthy recovery. I also ask that you pray for parker..i’ve just read that he’s getting surgery tomorrow and wish him the best.

Please and ThankYou,

Tha Fuzz =]

Well, I havent updated for awhile..so im sorry about that. But I’ve had a crazy week, doing tons of tests for my b.m.t evaluation..but im doing ok, I had my double lumen broviac put in yesterday morning, so my shoulder is a little bit sore but i’ve definately had worse…I started my chemo today..and its really strong/toxic..i have to wear glove when i pee!! Thats pretty dangerous if you ask me..luckily i only have 2 days of it then its 5 days of t.b.i (total body irradiation)..then on friday the 21st of september..is my long awaited BONEMARROW TRANSPLANT!!!!! YAY!! i cant wait!!..i ask that you keep me in your prayers..and keep my little buddie parker in your prayers as well..he isnt fortunate enough to be up here yet but he will be soon god willing..i also would like you to pray for jordan he is getting his transplant on the 28th..and pray for jaiden too..i dont know how long her treatment is but she seems SUPER strong so im not too worried about her..and PLEASE pray for christina..i dont really know her but she recently relapsed with aml and i want her to be ok..

So, its straight college town up here, everywhere you go you WILL see something affiliated with the U.F. Gators..and the hospital is ok..my room is SUPER small though, which sucks..i dont even have a bathroom, i have to poop in a darn portapottie type of thing..lol..which is really weird..and then the nurse collects it and weighs it..speaking of the nurses..they are cool but they cant EVER replace my family at aph(cause whether you like it or not..thats what we are)..i havent yet figured out how to work tha i.v. pumps here but i will..and all of my posters are going up tomorrow..YAY!(sarah is probly hating that part)..

 before i go.. want to thank everyone for praying for me and my family..your support helps ALOT..

=]

-tha fuzz